Dementia Carer Voices (DCV) were honoured to be involved in the partnership with NHSGGC Person-Centred Health and Care Collaborative Team and People Powered Health and Wellbeing (PPHW) Team from the ALLIANCE at the Learn and Share Event on Tuesday.
Tommy and Laura attended from the DCV team, were Tommy shared his story of his wonderful mum Joan. Highlighting the importance of the carer role, good and bad experiences, he and his mum went through in the 5 and a half years of Joan`s illness.
The day kicked off with our very own Lisa Curtis, Director of PPHW team introducing the day.
The day continued with Carers Stories, Conversation Café and Reflection
The Dementia Carer Voices team were delighted to be able to share a preview of the upcoming ‘Make a Difference’ Film being made with NHS Ayrshire and Arran and the University of the West of Scotland. The film will follow staff as they make their pledges and will see how they progress in fulfilling them. This will give a real insight into the ways in which people can make a difference in their daily lives, and crucially gives the opportunity for people to give honest feedback in real time about any potential barriers that make it harder for them to fulfil their pledge.
During the day everyone was asked to share any thoughts and reflections they had throughout, which were captured on the Learning Tree.
Health and Social Care professionals where asked to make a pledge on the yellow cards provided. Big thanks to everyone who made a pledge to make a difference.
- I pledge to listen to the needs of carers when talking with them in practice. I pledge to support health and care staff to make their pledge a reality in practice. To sign post carers to sources of support at an early stage to enable them to care for themselves – Ann McLinton
- I pledge to look at all the pledge from today and work with the services to make it happen – Elaina Smith
- I promise to continue to care and ask the questions, to talk with not to people and to listen and action their reply – Lynsay Creighton
- I pledge to listen to the carers and the patient – Margaret Irvine
- I pledge to spend more time with carers and ask more questions about their experiences – Billy McGuigan
- I pledge to listen to carers and recognise them as experts and equal partners in care – Heather Noller
- I pledge releasing time to care, understanding ear and make a difference to someone`s life – Donna Stewart
- I pledge to spread the word within the West of Scotland cancer centre (Beatson) of the carers information line to staff at all levels to ensure carers are given the correct/appropriate information – Jennifer Pennycook
- Better engagement with carers, starting with an information booklet about our environment and how they can be actively involved if they wish to be – Nicky Donnelly
- Always listen to carers story/information and to work together to provide the best outcome for patient and their carer – Catriona Grant
- I pledge to take the time to listen and ask the questions to both patient and carers. Find out more about these people. Ask what they need. Their fears. Discuss this with all my staff – Shona Managhan
- I pledge to remind staff that carers aren’t always looking for a miracle; it’s more important that they feel supported, listened to, included and valued – Carol Fitzharris
- I pledge to listen and empathise with carers at a meaning level which will make a difference – Angela Magee
- I pledge to always remember to acknowledge what an important job each and every carer does and to point this out to them. Also to listen to how they feel and what they need – Alison Menzies
- I pledge to listen and hear what the needs are to help and improve your situation. To try to find agencies to make the difference – Susan Easson
- I pledge to continue to stop and always look at the bigger picture, not just them as a patient and/or carer. Furthermore to listen and learn about every individual, their past and needs as well as loved ones – Nikki Sweenie
- I pledge to utilise knowledge gained today and share with colleagues, families and cares to make a difference, big or small – Gillian Sweeney
- I pledge I will attend our Dementia Café (Drumchapel) every 2 months at least to continue to hear their voices in 2015 – Laura Keel
- I pledge to be aware that carers have their own needs and to enquire as to their wellbeing, listen to their story and do what I can to meaningfully help – Revd Gordon Jones
- I pledge to continue to priorities carers throughout my work programme in hospitals – Claire Curtis
- I have been working as a home support work with Alzheimer Scotland for the last 17 years but now 2nd week into a new job as a post diagnostic link worker and hugely excited about trying to make a difference to people’s lives – Show kindness, care and listen to what is needed – Deirdre Paton
- I pledge to be a voices for those coming in the future – SDWG Member
- I promise to always try to start with listening and banish assumption and pre-conceptions.
- I pledge to be able to take the time to listen and ask them what is important to them today and do my best to do it and fulfil it.
- I pledge to explore how we can better use staff and the NHSGGC external website to raise awareness of the need to identify carers and to have that carer conversation.
- I pledge when redesigning services for cardio vascular patients, ensure patients and carers are engaged and involved and make sure their needs are central to new services.
- I pledge when providing guidance/tools etc to support staff creating and sharing patient resources with patients to also consider how they may also be created and shared with carers.
- “Fragmented Services” no joined up thinking or providing each of the services from childhood to adulthood. Encourage more open communications. Listen to carers voices, concerns and solutions. Remember some have multiple conditions.
- I pledge to ask senior managers what are we doing for carers? Could we do more?
- I pledge to help support clinical staff to involve carers by giving them the tools and evidence to change practice so that carers are involved in proper supportive joined up thinking.
- I pledge to do what I can to improve awareness of what makes a difference and how it is in all our gift to make a difference i.e. ask, listen, care, act without judging.
- I pledge to stop and ask the carer how much they would like to be involved in the physical care needs of their loved one while in the ward and listen to their news.
Carers where also asked, What would make a difference to you? on the blue cards.
- What would make a difference to you? – Small things make a difference. The loneliness is incredible the stress and anxiety are soul destroying. Just a person; somebody were would knock down the door or phone to ask how you are – Linda Jane McLean
- What would make a difference to you? – For carers to be involved in all consultations Involving my loved one – Anne MacDonald
- What would make a difference to you? – Too late now, like most carers of some with ASD and commuted conditions, however what would have helped would have been being listened to or supported by anyone of the organisations I spoke to before my son was 29 and finally diagnosed – Jenny Ure
- What would make a difference to you? – To see an improvement in my wife’s health for people who are family and friends to take time out to visit or ask about Agnes. For someone to recognise the caring role that the unsung, unpaid carers carry out.
- What would make a difference to you? – Someone from health/social care services actively contacting me and asking how things are and what is going well and what could be safer. What are concerns and then being able to offer something concrete that helps – Kath Gallagher
- What would make a difference to you? – Take time to listen to me. Better trained people to sign post me to holistic care for people with long term (multiple) conditions.
- What would make a difference to you? – When I am sharing my parent’s life story, their interests, what makes them who and what they are about. What they are and what they have done on their lifetime. Please listen.
- What would make a difference to you? – Improved communication between services and GP practices i.e. specialist nurses (hospital based) and GP practices. There is no joined up care, all must sit as two separate services.
Special thanks to Ann McLinton, Person-Centred Health and Care Programme Manager for NHSGGC, Lisa Curtice, Director – People Powered Health and Wellbeing and everyone involved for the kind inviting Dementia Carer Voices to be a part of the day.